Lee Jordan – Midlands Web Developer Web Development, Photography, Media Production, Social Media Collaboration and Marketing
Today there has been even more critisim of the Work Capability Assessment, a mechanisim for denying disability and chronic illnesses. What is the WCA?
I’m still having trouble with normal everyday sounds that feel very loud to me. What is happening to my hearing and when is a hearing aid not an amplifier?
The battle to get properly treated for Narcolepsy has just got harder. Plus Walsall Council have taken away support to my own bedroom in my own home!
It has been a very long time since I updated about the health gubbins and really it’s not very interesting. I’m getting really bad Cataplexy attacks with Sleep Paralysis!
As ever, I’m living with a few incredibly difficult chronic conditions that can only be managed and not cured. Cancer and Narcolepsy, as such there have been some more developments …
I’m trying to take the next few weeks easy as I’ve had the biopsies taken from my right leg. However my Narcolepsy is getting worse day by day.
Back in this coming week to have more moles removed, plus there might be a trip to Leeds coming up for genetic testing for skin cancer.
It struck me today how to explain what the EDS (Excessive Daytime Sleepiness) part of Narcolepsy is like. It’s like a computer program that reboots and starts over every 3 hours.
The least troublesome of the triad of life time conditions is Hashimoto’s Thyroiditus, however my Thyroid levels have just been found to be out of whack again, so back to the drawing board and more tests.
It turns out I have a new skin cancer tumor. Though it’s actually good news because it could have been worse if I ignored the issue. Being Mole Aware ….. Works!
The worst part about all of this, is that it’s not socially acceptable to have this condition. I’m going to put you in the picture as to what it’s like.
I feel, being in the thick of the war being raged on us by the coalition government, that I should break my public silence!
I think in times like these it’s important to have a sense of humor. Today my consultant said I need to have a Spinal Tap, just as long as we’re not doing a Pearl Jam that’ll be ok!
What are the positive effects of sleeping? Spurred on by Inception, I attempt to explain why even 10 minutes of sleep in the day is a good thing.
In my MSLT sleep test, I fell asleep in 70 seconds at 9am! Put it this way, I can see why I narrowly avoided multiple car crashes just getting to work in the morning!
This week I had the definitive test for Narcolepsy called the Multiple Sleep Latency Test and had confirmation of my sleep scores from way back in July.
It’s like being wired up to the Matrix!
I came home from hospital to read that the DVLA are revoking my driving license. I’m lucky to have a car in the first place and I know that it’s the right thing to do.
There haven’t really been any updates here, which is as frustrating for me as it is for anyone else. I had a severe turn in my illness in September sparked by a bad experience in late August.
Lee has been involved with the web for over 10 years, working on a wide range of web projects and coming from a media background, a digital native with huge ideas of how each project can benefit from an online presence. Learn more about him and his work on the about page.